Disability – Page 2 – Made of Stardust and Stubbornness

“Buffalo Is the New Buffalo” Review

Posted on August 31, 2024October 8, 2024 by Jen

“Buffalo Is the New Buffalo” by Chelsea Vowel

Powerful stories of “Metis futurism” that envision a world without violence, capitalism, or colonization.

Inspired by classic and contemporary speculative fiction, Buffalo Is the New Buffalo explores science fiction tropes through a Metis lens: a Two-Spirit rougarou (shapeshifter) in the nineteenth century tries to solve a murder in her community and joins the nehiyaw-pwat (Iron Confederacy) in order to successfully stop Canadian colonial expansion into the West. A Metis man is gored by a radioactive bison, gaining super strength, but losing the ability to be remembered by anyone not related to him by blood. Nanites babble to babies in Cree, virtual reality teaches transformation, foxes take human form and wreak havoc on hearts, buffalo roam free, and beings grapple with the thorny problem of healing from colonialism.

“Education is the new buffalo” is a metaphor widely used among Indigenous peoples in Canada to signify the importance of education to their survival and ability to support themselves, as once Plains nations supported themselves as buffalo peoples. The assumption is that many of the pre-Contact ways of living are forever gone, so adaptation is necessary. But Chelsea Vowel asks, “Instead of accepting that the buffalo, and our ancestral ways, will never come back, what if we simply ensure that they do?”

Indigenous futurisms seek to discover the impact of colonization, remove its psychological baggage, and recover ancestral traditions. These eight short stories of “Metis futurism” explore Indigenous existence and resistance through the specific lens of being Metis. Expansive and eye-opening, Buffalo Is the New Buffalo rewrites our shared history in provocative and exciting ways.

Review

I really enjoyed reading all of the stories in the book! The Locating Myself, Preface and Conclusion chapters are important to read as they give a lot of context for the kind of stories that are included. Something that is often ignored is that all of the stories about world ending invasions have already happened to many Indigenous populations. The stories in this book play on that concept in different ways. The introduction gives a short explanation for the stories included. Each story also includes an explanation of the story and several footnotes which are interesting to read as they give additional context for the story and the inspiration for them.

BUFFALO BIRD – I liked the way it played out though it was tricky keeping track of the story as it jumped between different times in the life of the shapeshifter character. Though I did think the different time and situations had a common thread that made it work.

MICHIF MAN – This one was interesting as it was split between a modern day academic presentation of whether or not Michif Man actually existed or was just a metaphor and then actual scenes from the character’s life. Interesting story!

DIRTY WINGS – This one is a dream / stream of consciousness story so it’s a bit tricky to get. It’s interesting though and I really enjoyed the explanation section for this one.

MAGGIE SUE – This one takes some work to get through because it’s a detailed story that the POV character is telling about an event that happened. The character isn’t the main character of the story but actually a side character who encounters the main character as they head off on a quest (basically). There’s a lot going on in the story with a few side stories as the character explains things and it does take work to follow along. Worth it though.

A LODGE WITHIN HER MIND – A pandemic story! Interesting take in the idea of being uploaded into a virtual reality and what it can mean for you afterwards. The ending of it is neat.

ÂNISKÔHÔCIKAN – This one has an interesting idea – using nanites to force all language heard by a person into Cree, from birth, in order to create more native speakers of the language. The story is short and it’s intended to raise more questions than answers as we only see the beginning years of the child’s life without a lot of detail. How will it work as the child grows up? There’s hints of the idea of how we claim that technology will save us but it never works without consequences.

I, BISON – This story takes the idea of digital uploads and expands on what it would mean in the context of spiritual connections to the body. It also explores the idea of disability or mental illness and what actually disabled us. I really liked the ideas presented and the explanation is after the story is interesting.

UNSETTLED – And this is the story that deals with the idea that Indigenous populations are already postapocalyptic. They’ve had their lands stollen and their people enslaved or killed. What would happen if they were given control back? What would it take for them to decide that it was worth whatever cost they had to make? It’s an interesting idea and makes an interesting point. The explanation afterwards is great too.

Warnings and additional reviews are available on the StoryGraph page for “Buffalo Is the New Buffalo”.

Book Details

Author’s Website: Chelsea Vowel
Publisher / Date: Arsenal Pulp Press, June 2022
Genre: Science Fiction, Short Stories
Page Count: 341
Completion Date: August 31, 2024

Additional Thoughts About Murderbot

Posted on August 30, 2024October 5, 2024 by Jen

Note: This was originally posted along with my review of “Artificial Condition”, before I decided to move it to a separate post.

As much as I’ve enjoyed the first two books in “The Murderbot Diaries” by Martha Wells I have to say I have mixed feelings with the way intelligence is talked about in these books. Murderbot thinks of itself as superior to all other AIs because it hacked its governor unit and is no longer being controlled by the company. It also thinks itself superior to all humans. It has a lot to say about the intelligence of everyone – AI and human alike. Sometimes going as far as making judgements about the usefulness of those who are less intelligent. Since the books are from Murderbot’s POV the bias can be interpreted as bias on the character’s part more than the narrative suggesting it but it was something I noticed.

I also made note of how humans a categorized as human and augmented humans and it’s not clear who is augmented. Can anyone be augmented or are most of them previously disabled humans who need assistive tech like hearing aids or glasses? If most of them are in fact disabled humans then there’s some negative implications about the distinction. Though again it’s Murderbot’s POV and if it categorizes people that way because it feels closer to augmented humans than humans that’s different.

I do feel the way Murderbot feels superior to everyone and free to call everyone unintelligent (the word stupid is used a lot) is a problem. The idea that one is better than someone else just because they’re smarter is not the greatest idea to hold. It’s the root of eugenics and the reason people with intellectual disabilities are treated badly by everyone including people with physical disabilities who often try to distance themselves from the idea they may be unintelligent. “I may be physically disabled buy my brain is fine” ableism is rampant. People with varying degrees of intellectual disabilities have been categorized in the past with their level of usefulness for jobs and I see hints of that in how Murderbot talks about the various AIs it has worked with in the past and encounters on its journey. The idea of dumb vs smart technology may be a thing that is common in Science Fiction and talking about AIs but we should all be aware of where it comes from and what it means when applied to people.

It’s true the humans Murderbot encounters are putting themselves at risk and making choices that would have gotten them killed if not for Murderbot being there to protect them. But is that really a lack of intelligence? Are they really stupid or merely young and inexperienced with how bad things can be? Should they “know better” or have they not yet had the opportunity to learn because they are young? Even for those who should “know better” the choice is still theirs to make. We may think those choices are wrong but if they know the risks and make them anyway are they really “stupid” or just reckless with their lives? While it’s true people use “stupid” as a short cut for a lot of flaws, that is in fact the problem. We make these kinds of judgements all the time and feel superior because we apparently smarter than those who make “poor choices” but I’m sure somewhere along the line we go out and make a choice someone else would question us about.

Previously I wrote an essay called “The Problem of Intellectual Ableism” that I think is relevant to this post. Give it a read. I don’t believe the problems I see in this book are entirely intentional, and I don’t have anything against the author for any of this. The issues I see in the Murderbot Diaries are present everywhere to varying degrees as they are systemic issues. People often use intelligence based insults whenever they judge others – which is the whole problem. These books just seemed to emphasis that a lot because of Murderbots superiority complex. At least in this book Muderbot learns that it can be wrong in its assumptions – it originally assumes ART is a “dumb bot” before it learns better. Still… the assumptions were made, as they often are about intelligence and worth.

How we talk about disability

Posted on August 24, 2024October 5, 2024 by Jen

Note: Originally posted on https://jenrohrigdesign.com/

The way we talk about disability matters but the complicating factor is that different people and different groups have different preferences. People with intellectual disabilities tend to prefer person first language and the concept of “see ability not disability”. This is because of the long history of being dismissed and looked down on by everyone including those with physical disabilities. If you’ve ever used the phrase “I may have a physical disability but my brain is fine” you’ve contributed to. On the flip side people with physical disabilities and some developmental disabilities (like autism) tend to prefer identity first language and usually (but not always) don’t find the use of the word disabled offensive. Some don’t like to use the word disabled but instead prefer to only use the name of their identity – Deaf or Autistic for example. None of this is 100% true all of the time but in general it’s a good baseline to understand.

When we talk about accommodating disabilities there is often a focus on the deficits that the accommodations are helping with. This individual can’t hear so they need closed captions or ASL interpreters; this individual can’t walk to they need a wheelchair; and so on. This is especially true in education settings for children who have IEPs. Because of the way school systems focus on their budgets they tend to focus on how much something will cost. This results in parents having to fight to get the accommodations their child needs by emphasizing their disabilities in order to prove that the need exists, instead of being able to focus on how the accommodations would help them succeed in school. This battle often repeats each year because school administrations will want to take away accommodations if they see an improvement. The argument the school will use is that the child has improved so the accommodation obviously isn’t needed anymore, ignoring that the child is doing better with the accommodations and taking them away would mean not doing as well.

Because there is such an emphasis on deficits in education there ends up being a push for “seeing abilities not disabilities”. It becomes especially true for people with intellectual and developmental disabilities as they fall behind their peers in school. Sometimes this is the case before they even start school when doctors tell parents that their children won’t amount to much because of their disabilities. So naturally organizations like Special Olympics will focus on proving what people with intellectual disabilities are capable of doing rather than what they can’t. Special Olympics is of course focused on sports so there is an emphasis that sports don’t see disability. There’s nothing really wrong with this thinking in a general sense. It is important to see that a person can be capable of things and not make assumptions based on their disabilities. That’s why people act so amazed when a person with Down Syndrome completes a Marathon. There’s an assumption that they can’t possibly run a marathon, when the truth is they often can with enough training and enough support just like anyone else.

Of course limitations will always exist (even without disabilities in the mix). The key is not allowing other people to enforce false limitations on a person, but also acknowledging the real limitations that exist. Because, ignoring a disability completely will cause harm if not acknowledged. It’s also a problem when people say “if this person with a disability can do this why can’t you?” ignoring that everyone’s abilities actually are different. That’s why my preference is to see the disability along with the ability. I’m still hard of hearing regardless of having a hearing aid. My hearing is not 100% – there will still be times I don’t hear something and people will need to repeat themselves. I also still need closed captions to watch videos or TV shows – the sound is not clear enough to hear everything and there is usually background noise. So yes I still need people to “see my disability, not just my abilities”. But I do think we can change how we talk about our disabilities so that it’s not always about the deficit. Just saying I need people to repeat themselves or captions should be enough without having to explain that I am hard of hearing. There shouldn’t be a reason to have to prove anything. Access needs should be understood and accepted across the board.

Additional Reading

“I Shouldn’t Have to Dehumanize My Son to Get Him Support: Instead of focusing on the challenges facing disabled people, we should emphasize goals.” – by David M Perry at “The Nation”

“The Problem of Intellectual Ableism” posted by me on this blog.

“About Limits” posted by me on this blog.

“Season One: Iris and the Crew Tear Through Space!” Review

Posted on August 4, 2024October 8, 2024 by Jen

“Season One: Iris and the Crew Tear Through Space!” by Cait Gordon

In a galactic network known as the Keangal, where space is accessible.

Lieutenant Eileen Iris and the command crew of the S.S. SpoonZ haven’t a clue what it means to be disabled. An unexpected conversation with an intergalactic janitor brings up the question but offers no answers before he’s ‘ported away.

Unfazed, duties resume as Iris manages an overprotective guidebot; Security Chief Lartha and her sentient prostheses offer kick-ass protection; Mr. Herbert’s inventiveness is a godsend (although he’s not quite grasped how to flirt); Commander Davan’s affable personality comes through whether trumpeted, texted, or signed; and Captain Warq’s gracious but firm leadership keeps everyone at their best.

Until on one mission, where the crew tears through space.

Just a little bit.

Review

I really enjoyed the characters, (which included both disability and LGBQIA+ representation), and the various adventures they all had. I thought showing how well they all worked together worked for the book and it’s a great concept. Here’s the thing – I would have enjoyed this more if the first chapter hadn’t contained the scene mentioned in the description where the intergalactic janitor calls the crew disabled and the crew has no idea what it means.

I understand the intent behind the book with all access needs being taken care of and everything is just fine – similar to the Star Trek: The Next Generation universe where everything is taken care of (with some exceptions once you look beyond the Enterprise). But I also felt like the author wanted to have it both ways. Never mentioning disability, just accessibility needs but there are still moments in the book where needs aren’t always met completely or in a way that works for everyone. Also there was a sub-plot about one character who was not sensitive to diverse body-minds and had to be made to be more aware of his behavior.

Now it could also be said that the reason “disability” is never mentioned is that several, if not all, of the crew members are actually aliens who have different access needs that present as real world disabilities (autistic, d/Deaf, vision issues, non-speaking with mouth words, etc). Which would be the actual reason why disability is never brought up because they’re not disabled in a way that we’d call it. But other terminology related to disability is used the same way we would use it, accessibility, wheelchairs, guide bots (as apposed to guide dogs) and so on. While you may be able to talk about various access needs without using the word disabled it makes it awkward to read about as a disabled person.

Also everything is ideal for the crew but no mention is made of anyone with higher support needs or intellectual disabilities. How are they taken care of in this universe? Are they helped or is all of this access for only the elite? It’s implied at one point that healthcare is paid (for some at least) but there are gaps in the world building that lead to more questions.

I honestly fee torn about this review, because I think without the “but you’re disabled” scene at the beginning I would have been focusing on the characters and the plot which are very good. In many ways the book does what the author appears to want to do with regard to showcasing how things could be. Unfortunately, for me the scene in the beginning brought up all the various questions about how the universe works. How did they get where they are without needing to use the word disabled? I also do wonder if I’m being hyper critical because I’m disabled too and have certain ideas about what we need to be saying about disability seem to be different from the author’s ideas.

Warnings and additional reviews are available on the StoryGraph page for “Season One: Iris and the Crew Tear Through Space!”.

Book Details

Author’s Website: Cait Gordon
Publisher / Date: Renaissance Press, September 2023
Genre: Science Fiction
Page Count: 302
Completion Date: August 4, 2024

“The Spirit Bares Its Teeth” Review

Posted on July 21, 2024October 8, 2024 by Jen

“The Spirit Bares Its Teeth” by Andrew Joseph White

London, 1883. The Veil between the living and dead has thinned. Violet-eyed mediums commune with spirits under the watchful eye of the Royal Speaker Society, and sixteen-year-old Silas Bell would rather rip out his violet eyes than become an obedient Speaker wife. According to Mother, he’ll be married by the end of the year. It doesn’t matter that he’s needed a decade of tutors to hide his autism; that he practices surgery on slaughtered pigs; that he is a boy, not the girl the world insists on seeing.

After a failed attempt to escape an arranged marriage, Silas is diagnosed with Veil sickness—a mysterious disease sending violet-eyed women into madness—and shipped away to Braxton’s Sanitorium and Finishing School. The facility is cold, the instructors merciless, and the students either bloom into eligible wives or disappear. So when the ghosts of missing students start begging Silas for help, he decides to reach into Braxton’s innards and expose its rotten guts to the world—as long as the school doesn’t break him first.

Review

This was such a good book with a lot of great characters besides Silas. While it doesn’t have quite as much gore as the other’s other book, there is some, all with a medical focus this time. I really enjoyed how Silas struggles to work everything out while dealing with everything else going on for him. The plot is very dark and disturbing but I really like how everything plays out. Certain things were not a surprise while others completely were and I really enjoyed it all. And I was really glad a particular plot point was resolved the way it did. The ending is a bit open ended but I think it makes sense given the storyline.

Be sure to take note of the authors warnings at the beginning of the book. Also be sure to read the authors end notes because while this story is fantasy the ugly truth is people always been sent a way because they were deemed unfit by society and many have been experimented on throughout history.

Warnings and additional reviews are available on the StoryGraph page for “The Spirit Bares Its Teeth”.

Book Details

Author’s Website: Andrew Joseph White
Publisher / Date: Peachtree Publishing Company, September 2023
Genre: Historical Fiction, Horror, Young Adult
Page Count: 381
Completion Date: July 21, 2024

“Loka” Review

Posted on June 4, 2024October 9, 2024 by Jen

“Loka” (The Alloy Era No. 2) by S. B. Divya

Akshaya is the hybrid daughter of a human mother and an alloy, a genetically engineered posthuman―and she’s the future of life on the planet Meru. But not if the determined Akshaya can help it. Before choosing where her future lies, she wants to circumnavigate the most historic orb in the universe―the birthplace of humanity: Earth.

Akshaya’s parents reluctantly agree to her anthropological challenge―one with no assistance from alloy devices, transport, or wary alloys themselves who manage humanity and the regions of Earth called Loka. It’s just Akshaya; her equally bold best friend, Somya; and a carefully planned itinerary threading continent by continent across a wondrous terrain of things she’s never seen: blue skies, sunrises, snowcapped mountains, and roiling oceans.

As the adventure unfolds, the travelers discover love and new friendships, but they also learn the risks of a planet that’s not entirely welcoming. On this trek―rapturous, dangerous, and life-changing―Akshaya will discover what human existence really means.

Review

This was a great book. It was a very quick read and I enjoyed reading Akshaya and Somya’s adventure around the world. Akshaya is a very typical teenager who wants to be able to make her own choices about everything and not feel forced to conform to what her mother wants for her. Both she and her mother have a lot to learn and do so throughout the course of the book. I really enjoyed the additional aspects of how disability was used. Like her mother Akshaya has sickle cell anemia and must figure out how to work with it on Earth where it’s more disabling than it would be on Meru due to different conditions. The entire story is about self discovery and figuring out where you belong in the universe.

While this book is a sequel to the previous book “Meru” – Akshaya’s parents are two of the main characters from that book – “Loka” works well enough as a standalone novel. I think anyone could read it without having read the first book. Though some plot points might be helpful to know for additional context.

Thank you to NetGalley, 47North and S.B. Divya for access to the ARC in exchange for an honest review.

Warnings and additional reviews are available on the StoryGraph page for “Loka”.

Book Details

The cover shows a person and a small machine that looks somewhat like a dog in a valley between cliff sides with large patches of green up the sides. The two figures are in the distance standing on a rock looking upwards at the blue sky visible outside of the valley. The book title is written from top to bottom one letter at a time and the author's name is at the very top.

Author’s Website: S. B. Divya
Publisher / Date: 47North, August 2024
Genre: Science Fiction
Page Count: 367
Completion Date: June 4, 2024