Full title: “Being Seen: One Deafblind Woman’s Fight to End Ableism”
Written by Elsa Sjunneson
Published by S&S/Simon Element, October 26, 2021
288 pages
Completed September 2, 2024
A Deafblind writer and professor explores how the misrepresentation of disability in books, movies, and TV harms both the disabled community and everyone else.
As a Deafblind woman with partial vision in one eye and bilateral hearing aids, Elsa Sjunneson lives at the crossroads of blindness and sight, hearing and deafness—much to the confusion of the world around her. While she cannot see well enough to operate without a guide dog or cane, she can see enough to know when someone is reacting to the visible signs of her blindness and can hear when they’re whispering behind her back. And she certainly knows how wrong our one-size-fits-all definitions of disability can be.
As a media studies professor, she’s also seen the full range of blind and deaf portrayals on film, and here she deconstructs their impact, following common tropes through horror, romance, and everything in between. Part memoir, part cultural criticism, part history of the Deafblind experience, Being Seen explores how our cultural concept of disability is more myth than fact, and the damage it does to us all.
I really enjoyed this book and the way Elsa mixes personal stories with Deafblind history and criticisms of portrayals of disability in various mediums. The criticisms are all relevant to her life because the lives of disabled people are often shaped by what others assume to be true. Like all of us who are disabled Elsa has had to fight the ableist assumptions people have made in order have a life that she wants. She has a whole chapter on Hellen Keller and how Hellen’s story is often changed to suite ableist ideas of who she was. There’s also a lot to be said for the damage caused by people “not seeing disability” – because when that happens it results in a lot of internalized ableism to unpack while also needing to learn how to actually work with your disabilities instead of ignoring them to pass as non-disabled. There’s also a chapter about disability in science fiction and how we’re often erased.